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Home » Diet » aHUS and Diet: What Should I Eat and What Should I Avoid? – aHUS News

Atypical hemolytic uremic syndrome (aHUS) is a rare disease in which blood clots are formed in the small blood vessels of the kidneys, leading to symptoms such as hemolytic anemia destruction of red blood cells thrombocytopenia, or a low platelet count, and kidney failure.

Although aHUS is a genetic disease, it is commonly triggered by various environmental factors including eating certain foods. Foods also can cause flare-ups that can be either mild or severe.

Here are some pointers about food that you should keep in mind to help prevent or at least minimize aHUS flare-ups.

You should avoid contaminated food under all circumstances. Food and water contaminated with a type of bacteria called Shiga-toxin-producing E. coli can cause the acquired illness typical HUS. Symptoms of typical HUS are similar to those of aHUS and include hemolytic anemia, kidney failure, and long-term neurological complications.

Maintaining proper kidney health is important for reducing the severity of complications in aHUS. Try reducing your total daily salt intake to 5 to 6 grams per day (about a teaspoon). Its also important to keep yourself well-hydrated by drinking at least 1.5 to 2 liters of water daily.

While any food can potentially trigger an allergic reaction and consequently an aHUS flare-up certain foods areknown to cause the majority of allergic reactions. These foods include milk and milk products, eggs, sesame seeds, soy, peanuts, tree nuts, wheat, fish, and shellfish. It is important to identify the types of food to which you might be allergic and make changes to your diet accordingly, as even a small quantity of these foods can cause an aHUS flare-up.

To ensure good nutritional intake, it is important to find appropriate substitutes for foods to which you are allergic. You can create a safe dish by substituting good alternatives for allergy-causing ingredients. For example, cow milk may be substituted with rice milk or oat milk.

Your doctor or a dietitian will be able to provide a personalized diet regimen keeping in mind your susceptibility to food triggers. Make sure you follow this diet plan strictly and get approvals from the dietitian before incorporating any changes to your diet.

Some foods can trigger a very severe allergic reaction known as anaphylaxis, which can be life-threatening. Epinephrine (adrenaline) provides a first-line treatment in the event of anaphylaxis. If you are susceptible to allergic reactions, it is advisable to have an epinephrine auto-injector handy.

Delayed administration of epinephrine in the event of anaphylaxis can result in the risk of hospitalization and other adverse effects, including death. Therefore, it is important that you and your family members familiarize yourselves with the operation of the epinephrine auto-injector so that it can be used immediately in case of an emergency.

Last updated: Nov. 6, 2019

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AHUS News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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zge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.

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aHUS and Diet: What Should I Eat and What Should I Avoid? - aHUS News

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Home » Diet » aHUS and Diet: What Should I Eat and What Should I Avoid? – aHUS News